Spondo What?

Photo courtesy of the Mayo Clinic

I finally got the x-ray results for my back, and the chiropractor tells me I have spondylosis.  I know I was diagnosed with scoliosis as a child, but had no clue what spondylosis was and I wasn't sure I wanted to know.  So the doctor shows me the x-ray and starts to explain what is happening with my back.

Needless to say I was a little freaked out by all his doctor talk, so I asked him to explain it to me in normal person talk.  He laughed at me and basically said my vertebrae are degenerating and I have bone spurs on the ends of them, my tail bone is at a funky angle, and my left hip is higher than my right hip.   I also have arthritis of the spine! Yay me!  So he wants to see me 3 times a week for the next 4 weeks to work on my back (more snap! crackle! and pop!).  He says they should be able to get me walking with minimal pain in no time.

I went to my rheumy yesterday and told him about the diagnoses, and he wants me to be careful with the chiropractor because he's afraid they're going to mess me up even more.  He then proceeded to give me 2 cortisone shots (one in each hip) to help with my myofascial pain.  My hubby was with me and I could see the look on his face.  I had seen the needle (about 5 inches in length) and asked hubby if the doctor had pushed the whole needle in my hip (the doctor gives a numbing shot first so I couldn't feel the big needle), and my hubby could only nod his head up and down.  The shots have actually helped with the tenderness in my legs.  Hopefully it lasts a while before wearing off.

So tomorrow I go back to the chiropractor and tell him about my rheumy's concerns. My rheumy also gave me a note for the chiropractor explaining what he would like accomplished during physical therapy.  He said to let him know if the chiropractor couldn't accommodate me and he would send me to a new physical therapist.

I just want the pain to go away!

Gentle Hugs,
Bonnie

My Spine!!!!

I was diagnosed with scoliosis as a child. I was one of the lucky ones who were diagnosed early enough that it could be treated through exercise (several exercises every day for 6 years), and I didn't have to have surgery or wear a brace.

My mom was the one who noticed when I was 5 that my back looked a little crooked. I had to see the specialist twice a year for 6 years. He would x-ray me, take measurements, adjust the lift I had to wear in my shoe (left leg is 3/4 of inch longer than the right leg), and adjust my exercises. Finally, when I turned 11 he told me that he no longer had to see me because I had reached the height I would be for the rest of my life. I had stopped growing at 5"4 (I was a tall 11 year old, but quickly became a short 12-46 year old).

The point of my post is the back pain I have suffered through my entire adult life. As long as I can remember I have always had problems with my back. I threw my back out the first time at age 29 which was not a pleasant experience. For an entire week I couldn't move without experiencing excruciating pain. I have dealt with this on and off for the last 17 years.

Lately my back pain is getting worse.  By the time I get home from work the pain is so bad I can't do anything else.  I spend my weekends in bed trying to get some relief.  I have tried my tens unit, heating pad, ice pack, back stretches, and pain medication, but nothing seems to work.  I have another 10 days before my rheumy appointment (which was supposed to be today), and I hope he has something that will help with this pain.

I started wondering if there was a link between scoliosis and fibro and found this very interesting link: http://chronicfatigue.about.com/od/whosatrisk/a/fms_risk.htm.  One thing mentioned in the article was that "about 25% of people with low back pain eventually developed FMS, and scoliosis or other postural disorders made FMS more likely."

So for now I get through one day at a time and hope that there is something that can help with the pain.  Until then...

Gentle Hugs,
Bonnie

What Do You Mean You're Taking A Few Days Off?

I called my rheumy today to confirm my appointment for this Saturday.  I've been looking forward to this appointment for about a month now since I've been in flare up mode.  Well apparently my doctor has decided to take a very long weekend (Friday-Monday) and now my appointment has been moved to the 22nd.  TWO MORE WEEKS!

I understand my doctor probably needs a vacation since he is the only fibro specialist in the city, but not when I'm in flare up! I know I'm being selfish, but I'm tired of walking around like I'm an 80 year old (no offense to the very active 80 year olds who can out walk me right now) instead of like the 46 year old I am now!

Hopefully the nurse heard the desperation in my voice and will be able to squeeze me in sooner, but the odds are slim.  So for now I will push myself to make it through the school day, and relax with my heating pad and tens unit when I get home.  Two more weeks! I can make it!

Gentle Hugs,
Bonnie

Trying Not To Stress, but...

it's hard not to do when you know you're hubby might not get paid for awhile.  My Babe unfortunately is a federal employee who has to go to work each day while knowing he is not going to get a paycheck until government decides to get their act together and come to some kind of understanding.  This whole thing is a mess.  Right now the republicans are on my last nerve (which are shooting me some serious pain).  I think Jon Stewart sums up my feelings best:

It's bad enough that the shutdown is affecting my personal life, but it has also crept into my teaching life.  I have been teaching Point of View and was going to show my kids the classic story of the 3 little pigs from the Library of Congress.  I press the bookmark I had saved and this was the message I received:

A Note to loc.gov Users
Due to the temporary shutdown of the federal government, the Library websites, except the legislative information sites THOMAS.gov and beta.congress.gov, are currently unavailable!

WTF! I was so mad! Luckily I found a different website that had a version of the story (though not the one I wanted) to teach my lesson. I guess the Library of Congress finally realized how silly they were being and have restored the website (The Library has restored access to all sites in addition to our legislative information sites. Other legislative branch agencies, and many executive branch agencies with information functions similar to the Library, are granting public access as well.)  Too bad my lesson is over!

So my flare up is continuing into it's 4th week now.  I really need some kind of relief soon.  Have my rheumy appointment next week.  Hope he can help with this flare.  For now I will try not to stress over how we are going to pay our bills and feed our family.  Luckily our mortgage company is working with us for now.

Gentle Hugs,
Bonnie

My Get Up and Go has Got Up and Went!

This is definitely me!

My body has been in flare up mode ever since the rainy week we had.  It's been almost 3 weeks and the pain seems to be getting worse not better.  I feel bad because I'm conserving what energy I have to make it to work everyday.  Anyone who teaches can tell you that it is not a sit around and relax kind of job.  I get home so exhausted and in so much pain that I just change into my jammies and climb into bed.

Luckily for me I have the best hubby in the world.  He knows I'm hurting and he takes care of me and the boys.  I know it hard for him sometimes having to be the one that takes care of everything, and I feel guilty that I have to rely on him so much. 

The problem is, that I don't have the energy to do anything with him or the boys on weekends.  My feet, back, shoulders, and head hurt so much that I just want to sleep my weekends away.  My parents don't understand what I'm feeling.  My mother is constantly at me to just get up and deal with the pain.  My dad thinks the solution is to just get on the treadmill and everything will be alright! I know my boys wish I could do more with them, but they know how much I hurt.

I have an appointment to see my rheumatologist in 2 weeks, and I'm going to ask him to refer me to a local physical therapy place that deals with fibro.  They have aqua therapy, massage therapy, plus exercises and yoga.  I'm hoping that they will help with some of my pain issues.  It might also be time to adjust or change my medications.  I have hydrocodone for when the pain gets to the unbearable stage, but I try not to use it that often.  I have an addictive personality, and the last thing I need is to become addicted to pain killers.

So for now I will rest and recover and ignore my parents (I know they love me and mean well).  I will continue to lean on my best friend and hope that I don't end up pushing him to his breaking point.

Gentle Hugs,
Bonnie

My Poor Hubby!

My hubby has been having a lot of trouble with hip lately.  He went to the doctor who took an x-ray and said he couldn't see anything.  He then sent him to my rheumatologist who said it he thought it my be his gout moving to his hip.  He gave him a shot of cortisone, upped his gout medication, and sent him on his way.

After 2 weeks without relief, he went back to the doctor.  What he forgot to mention the first time he went to the doctor was that when he walked the pain went away, but would come back after sitting for awhile (not gout symptoms).  So the doctor sent him to get an MRI.

Well the MRI showed that he has AVN (avascular necrosis) of the hips (yes plural).  Both of his hip bone joints are literally dying.  He is going to have to get a hip replacement for his left hip and bone graft for the right hip.  The specialist said we could probably wait until June (when I'm off for the summer) for the surgery, but he will need to x-ray his hip again in a month to make sure it isn't getting worse.

We are in for a long, fun summer!

I Like Him, I Really Like Him!

Went to see my new rheumatologist on Friday, and I left feeling very relieved.  He did all sorts of tests, asked Brian and myself many questions, and determined that it is definitely Fibromyalgia. He didn't make me feel like I was crazy or making up the pain.  He was very caring, and spent a good amount of time with us and didn't rush us through the appointment.  He changed several of my medications (plus gave me one to help me sleep), and gave me cortisone shots in both of my hips to relieve some of the pain there.  He is sending me to get a bone density test and some xrays, plus more blood-work. He did tell me that I have carpal tunnel in both of my wrists and gave me some braces to wear for that, plus he is sending me to get physical therapy to help with the pain in my arms and shoulders.   He told me that we would work together to figure out a way to manage my pain.

So as I said, I like him, I really like him!!!